I know I am way behind on my updates and I really don't have many new pictures but life has been absolutely crazy these past couple of months. To give you an quick update after we took Haley for her 1 year check up we were told that we had one more month to try to get her to gain some weight since she had been sick a lot and her Dr. was hoping maybe that was why she had fallen off of the percentage weight charts. In that month we also decided to take her to an allergy Dr. just to make sure that she was not allergic to any foods and were possibly causing her not to want to eat. All of the tests turned out fine but the Dr. diagnosed her as "failure to thrive". Basically meaning she isn't growing or at least not growing enough. We tried doing all soy products for one month but that didn't seem to change her eating habits, she still just didn't seem hungry. Needless to say our one month check up with the pediatrician did not have the results the Dr. was looking for. In one month Haley gained 1 oz. :( The Dr. was hoping she would gain at least 2 1/2 lbs so she was not even close! Next steps were to start working with a nutritionist and blood tests to start ruling out any diseases that she may have. The first ones that they did was Cystic Fibrosis and Celiac Disease. After a very stressful week of waiting for these results, prayers, and fighting with the allergist Dr. to get the results the results were negative!! I can't tell you how excited we were to hear these results. Apparently the stereotype child with Cystic Fibrosis is a blonde hair, blue eyes, fair skin, little girl....which of course is Haley but as we all know that is 100% her Dad as well. After meeting with the nutritionist and doing the first evaluation she suggested that we see a GI Dr. because it looked like maybe it was hurting her to eat and since she had acid reflux so bad as an infant her esophagus could be inflamed. After meeting with the GI Dr. we decided to do an Upper GI and an Esophogram the day after Christmas. Needless to say we couldn't really focus too much on Christmas day because we were worried about the tests taking place the next day and of course the results. After probably one of the most emotional days (lately) those results turned out negative as well. The other test that the GI Dr. wants to do would require us to put her asleep and they would put a probe with a camera on the end of it down her throat to check out her esophagus and then take biopsies on the way out. Since this is such an evasive procedure we are trying to do all that we can to find other solutions in hope that this procedure never needs to take place. They also want to do some more blood work but i told them "no more blood work" unless we do have to put her asleep for this other procedure and then they can take the blood then so she doesn't know it. As it stands now, any office that we go into she automatically starts crying because she thinks someone is going to stick her or do some sort of test on her....poor baby!!! Currently we are trying to find a therapist that will come work with her to make sure that she is eating properly.
All in all though Haley is still such a happy toddler! She is almost always smiling, giggling, and living life to the fullest as long as she isn't sleepy or in a Dr.'s office! She just loves going through the mall, grocery store, etc and waiving at all of the strangers. She is our little social butterfly! It's really cute when you see an elderly person get so excited when she starts waiving and laughing with them...it's truly amazing! I can't believe all of the new things that Haley is learning these days. Of course we think she is so smart but we are definitely biased :) Here are a few videos updates of Haley! She is such a busy body.....the only time she stops playing is when she is sleeping!
Monday, January 19, 2009
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